Patient 2
Patient 2 was discharged from the NICU on nasal cannula to be used
during sleep. Soon after discharge, he was readmitted several times for
breath holding spells and unusual rigid movements but had normal repeat
EEG and negative work up.
Currently, he is 4 years of age, has global developmental delay, is
non-ambulatory, non-verbal and G-tube dependent. Since NICU discharge,
he is no longer having apneic episodes during sleep and oxygen was
discontinued. Ophthalmology has since noted esotropia, bilateral myopia
and astigmatism. He is also being followed for short stature, obesity,
GERD, and he has undergone strabismus surgery, tonsillectomy
adenoidectomy, and bilateral orchiopexy.
Patient 2 continues to have mild torticollis and mild knee flexion
contractures bilaterally managed with custom solid orthoses and physical
therapy. He also receives occupational and feeding therapies and has
nursing at home.