Participants
Eligible children (a) had a primary cancer diagnosis or new recurrence of cancer (b) were aged between 5-17 at time of recruitment (c) were fluent in English (including parents). Children and parents were deemed ineligible if they had a pre-existing neurodevelopmental disorder or disability that precluded completion of measures. At the time of enrollment, 336 families participated.
At five years post-diagnosis, 18% (n = 59) of children from enrollment had passed away [17]. Of 277 approached families, 45% (n = 124) participated. For the current manuscript, the final sample included only mothers (N=80) and children (N=50) who completed mother proxy-reported QOL and adolescent self-reported QOL at 5-year follow up.