Participants
Eligible children (a) had a primary cancer diagnosis or new recurrence
of cancer (b) were aged between 5-17 at time of recruitment (c) were
fluent in English (including parents). Children and parents were deemed
ineligible if they had a pre-existing neurodevelopmental disorder or
disability that precluded completion of measures. At the time of
enrollment, 336 families participated.
At five years post-diagnosis, 18% (n = 59) of children from
enrollment had passed away [17]. Of 277 approached families, 45%
(n = 124) participated. For the current manuscript, the final
sample included only mothers (N=80) and children (N=50) who completed
mother proxy-reported QOL and adolescent self-reported QOL at 5-year
follow up.