4. CONCLUSION
CF R.I.S.E was successfully translated and adapted in our center. The
success of the adaptation of CF RISE program can be attributed to the
participation of a multidisciplinary team, utilization of educational
resources, and regular meetings for feedback and compliance. Based on
the program’s outcomes, the aim is to share all materials and surveys
with other centers, ensure their utilization, and benefit all pwCF.
In the coming period, our center will enroll pwCF aged 16-25 years in
the CF SOBE program. The enrolled patients will be reassessed for their
knowledge and skills after KAQs and RCLs. People with CF and their
families who receive personalized education within the scope of the
project are expected to increase their knowledge and skills about CF at
the end of 1.5 years. Periodically throughout the project, the
individual deficiencies of the patients will be identified through
interim information assessments and individual and collective trainings
(webinars, etc.) will be organized to overcome the information
deficiencies (see Figure 1).
It is aimed that the project will become a routine practice of our
center in the coming period. In addition, within the scope of the
project, joint visits with adult clinics with limited experience in CF
are aimed to increase their expertise in CF disease and active
participation of transfer clinics in the project.